Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Okay, it's time for some other specialists.
Go see a neuro-ophthalmologist to see if they can figure out a cause for you eye issues.
Go see a pulmonologist to assess your breathing (including MIP and MEP).
Get ALL of your records, including tests and notes from the neuro. They don't always tell you everything.
You could even consult with a rheumatologist to see if it's an inflammatory condition.
There are MGers who have no antibodies or a positive SFEMG. Would the neuro be willing to do a Tensilon test? A neuro-ophthalmologist might.
I'm really sorry that you don't have any answers, but that doesn't mean there isn't something wrong with you! Take some time to regroup, recharge your batteries, and then have at it again. Try to find doctors who are either in private practice or who have a great reputation.
I hope you will find answers that lead you to the truth!
Annie
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