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Old 12-29-2014, 10:57 AM
MSbelle MSbelle is offline
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Join Date: Nov 2014
Posts: 115
8 yr Member
MSbelle MSbelle is offline
Member
 
Join Date: Nov 2014
Posts: 115
8 yr Member
Default Need some help re: Lemtrada

Hello everyone.

I need some help. I'm going to revisit the subject of taking Lemtrada with my neuro. He suggested I go on it as a first treatment at my last appt, but due to the cost (we don't have any benefits), I declined. I'm on Betaseron now since our provincial drug plan covers it.

My progression has been quite rapid and we have decided to talk to the neuro about Lemtrada again, weigh the possible benefits with the possible risks (I know there are many), and we can come up with the money if we can be convinced that it's the best thing for me.

However, I'd *really* like to get in touch with someone (or some people) who've taken Lemtrada, or who are currently taking it, even those who are about to take it. I am in Canada, it's been out here for about a year from what I understand. I know it just got FDA approval in Nov so finding an American on it will likely not be possible. I will speak with my neuro and ask if he can get someone they have on it to email me. I think the UK has had it being used the longest... can anyone here help me find someone? I'd REALLY appreciate it. Thanks everyone.
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