Hi Abby,

My condition is EXTREMELY rare, but I'm sure there are some out there that have been misdiagnosed. LOTS is so rare that they just don't test for it. Many who took years to finally be diagnosed with LOTS were told they had ALS, MS, etc.

As I said, it's a simple blood test to identify LOTS. It's just that many doctors aren't even aware that it exists!

Hope you're doing better.