Originally Posted by booklover

Hi Maria,

So sorry your daughter is experiencing this at an age when she would normally be out having fun without such serious concerns. I have CRPS2 and find my brain/nervous system is centrally sensitized to bass/loud noise, bright light, cold air, etc. I find like your daughter, I miss most social occasions because of my limitations or last only a short time. From a theoretical viewpoint it's worth remembering it's the brain that is oversensitized so reducing stimulation across a range of input modalities will likely increase the time her brain can tolerate input. A few suggestions ear plugs (not very social but I have been known to wear them with long hair over top to lower noise level), timing/increasing my anti convulsant doses (to help down regulate) prior to social/ noisier environments, avoid shopping centres weekends and keep visits short. They don't tend to have doof doof music playing early mornings or mid week etc. When I go to the shopping centre I wear dark sun glasses to reduce input from fleuro lights . Also I have thought it would be worth seeing an audiologist myself about having some specialist ear plugs made up like musicians ear plugs that block certain auditory frequencies. I think you can possibly buy some basic ones to try on internet. Also if you google auditory sensory desensitisation or something like that, some professionals believe you can improve it I think through gradual exposure to noise and music. Anyway, I have a rather noisy 10 yr old son who likes music and I can definitely vote exposure has not worked for me! I could loan him to you, but I'm in Australia...

Best wishes

Booklover