I have a few questions for anyone with PPMS.... how quickly has your disease progression been? How old were you when you first started having symptoms? What's your lesion load like? Do you have a lot of spinal lesions (and few brain lesions)? Had anyone heard anything about chemotherapy treating PPMS?

I am 30, was diagnosed just over a year ago with RRMS, though my disease looks a lot more like PPMS (though my neuro won't dx me with PP yet since he wants to try DMDs with the hope it's RR). I have a lot of spinal lesions (even one at L1!). I also have brain lesions. My progression has been fast. I'm not sure if that's typical of PPMS or not. But I don't have remissions and I have had a couple times where I've felt like things got worse sort of suddenly, I have never recovered from anything. Most of my days are worse than the previous one.

I'd really like to hear from others. Thanks in advance.