Healthgirl, your onset sounds similar to my symptoms...I have a very high ANA with a negative ENA. I was diagnosed with Sjogrens and SFN....later with AAN which is now AAG (Autoimmune Autonomic Ganglionopathy). Yes, I get horrible spasms, like all the fascia in my body is tied in a knot...coat hanger headaches etc. I was also very athletic when diagnosed. Maybe get an autonomic work up?