Quote:
Originally Posted by remotetime
But I do wonder whether there is an advantage in knowing to a certainty. Especially, since vEDS is basically ruled out, and CMT has no real treatment.
Maybe if many family members were demonstrated to have it we could get into some research study. I'm already taking the vitamins.
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Hi,
Vitamins are not a help. There is no magic bullet for CMT.
The only advantage is knowing what you have for certain. You also can deal with the symptoms as they come along. Yes, there is no cure/treatment for CMT at the present time. However,
lots of research is already being done. It has been done and is going on. I doubt in my lifetime there will be any cure/treatment for CMT.
Each child has a 50/50% chance of getting CMT. As I said, symptoms can vary greatly even within the same family.