Originally Posted by nanaz

Blessings to each of you for your wonderful words, your straight up truths of your experiences!

Today was a grand 're-progamming' with a different rep. I met him during the scs education meeting, months ago.

Hubby asked a lot of questions. His responses were NOT based on sales. Not once did he lean an answer in that direction. Rather, he was very informative, and it just felt like his heart was in it...if that makes sense. On the way home, I asked Richard (my hubby) what he thought. He said this rep had good eye contact when speaking with us and Richard got the feeling he didn't seem to have anything to 'hide' so to speak. There's just something off about the other one. But they all work as a team so I may or may not have either of them again. It all depends on their schedule and which hospital the other is at.

After tomorrow, I see the PM Dr to go over my results. If its a move forward decision, I will be scheduled a consult with a neurosurgeon then be given a date for the surgery. It will be 2-4 weeks til I see the neurosurgeon and another 2-4 weeks after this appt. when a date will be scheduled. So I have plenty of time to research. Which is something I need to do.

In honesty, I found this forum during a search. This forum name and part of Mark56's post was in that search. I read over half his story in one night and finished the next day. So that is how I found my way here!

Yes, they gave us an Educational class on the SCS. If it weren't for reading here before my trial, I would have been sunk in the mud for sure this past week!

So, I got reprogrammed today, plus one setting added just for my back. I found out the lead floats in this space and is only held in place by one stitch. Of course, its going to move in this space and it actually moves downward. So he reset the leads and I had a full afternoon of being pain free. I was active from 3 til 9 as my grandson is sleeping over. I managed until 8 before my pain increased enough that I knew I had to sit. So I listened to my body, turned up the stem and took my first dose of medication today. I can either stim my back or legs. So doing one the other was throbbing. Meds and stim shut them both down!

I also learned nerves to the leg (from the spine) are way bigger than nerves for the back; therefore, its easier to get stim on the legs. The back nerves take a bit more tweeking due to their smaller size.

Basically, out of 7 days I had 3 good and 4 miserable. My calf pain was gone by lunchtime. It was due to most all the stim being at the lower end of the lead. I don't ever want to go through another day of any of these 4 miserable ones with this stim. This pain is enough then add that on.....well, I was closest I've ever been to the edge.

I get this removed tomorrow at 10a.m., then home for a much needed shower!!!!

Have our grandson tomorrow night. By Wednesday I will be back to learn all I can. Please know, I appreciate your honesty. I'm not afraid of the good, bad and ugly! If there's anymore advice or thoughts, or other places i might learn, please share.

Thank you for allowing me to lean on you this past week and for holding me up. Some may say.....'its just words'......that's OK....to me your words were my everything.