View Single Post
Old 01-08-2015, 04:12 PM
MelodyL's Avatar
MelodyL MelodyL is offline
Wise Elder
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
Default

Hi all. I'm back with a really good story. I also posted this on the Peripheral Neuropathy forum because it has to do with IVIG. Oh, the Toe Juice did NOTHING.

It's been about 7 years or so ago when Alan's neuro put him on IVIG for what she thought he might have that was causing his peripheral neuropathy. She said 'You might have CIDP so let's try IVIG". I remember asking her "will this help with the pain?" and she said "It just might". LIES!!

Anyway he did the IVIG for maybe two years or so every month. The nurse would come to the house, he'd be asleep for the whole thing and he's wake up and we really saw no progress so after two years it was stopped.

During the time BEFORE, Alan had developed psoriasis. Various little patches here and there and clobetasol took care of it.

Well!!! after the IVIG, and it began very slowly, his psoriasis began a flare up like you can't imagine. It got so bad that the clobetasol (and other topicals) failed to do a thing.

So he tried the laser at the dermatologist. Well!!! wonder of wonders, it cleared up completely. He used a compound cream twice a day and I could not believe it was ALL gone. He looked like a different man.

His doctor (our doctor) Dr. Fred said 'it will come back and when it does it will come back WITH A VENGEANCE" The dermatologist had said the same thing but what the heck did I know. I saw him with clear skin and I thought. Wow, we have a miracle here.

Slowly but sure it came back WITH A VENGEANCE, and Alan went back for the same laser treatment. IT DID NOTHING. Even Dr. Fred shook his head and said "oh Alan, you have some case going on here". We tried Lotions, change of diet, anti inflammatory this and that. I think he took steroids for a while and while that helped a bit, NOTHING really did anything.

Recently I looked up CAUSE OF PSORIASIS and I stumbled upon the info that it can be caused by a mutation of the Card 14 gene in a person's body.

So I said 'what the heck could have triggered this gene"? Oh, Alan has psoriatic arthritis also. BINGO!!!! LIGHTBULB MOMENT.

Earlier today I googled "Can IVIG cause psoriasis to get worse"?

The answers that came up on various forums was extremely informative. It seems that in some people yes indeed it does do that.

And then I said "wait a minute", all these treatments for psoriasis and psoriatic arthritis well, they suppress the immune system. That's how they clear up the psoriasis.

So what did IVIG do? BOOST his immune system.

So in my humble opinion (very humble believe me), while IVIG can help many people, god forbid they have some gene for something because it can be a trigger. The neurologist at the time had to be brain dead to not tell us this.

Right now he looks like the creature from the black lagoon. It's THAT bad.

So we put lotion and we already knew he had a Vitamin D deficiency which has been rectified. and we have tried this and that. I even bought a product called Toe Juice off the internet because it was supposed to help exfoliate people with skin conditions. It did NOTHING.

And I went on youtube and typed in Severe Psoriasis, and there are people who use knives to scrape the scales off of their skin. I kid you not. And there is one guy who was put on a Clinical Trial of Stelara and OMG, when he stopped taking it (he had had psoriatic arthritis and a 10 percent case of psoriasis on his body), well after he stopped the Stelara, he developed 6 different types of psoriasis. They have a video of him up on youtube. He is so not well today. He is in bed. And his WHOLE body has 6 different types of psoriasis and Johnson and johnson won't answer his calls.

Last night I put lotion on his arm and wrapped it up in Saran Wrap because we saw a show on Dr. Oz and he said it would soften the scales. It did do that but so what? He just took a hot shower and I think he scared himself when he came out of the shower. Hot water makes it looks MUCH WORSE. All over his knees and thighs and calves. Thank god so far, not his face. He did have patches under his eye once but for whatever reason, they went away. I have never seen cases (like they show on youtube) of people with these skin conditions)

All comments are welcome, believe me. I wonder if stem cell therapy would work on people with psoriasis. I'm going to do some digging.

Melody
__________________

.


CONSUMER REPORTER
SPROUT-LADY



.
MelodyL is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (07-25-2015), Enna70 (02-12-2015), Wiix (08-19-2015)