I was back to John Hopkins. I am getting progressively weaker. Mestinon and IVIG help, but there is still a progressive trend downward. Doctors have always said I have more than 1 autoimmune issue. My sed rate is now over 100. I am in a lot of pain and the livedo reticularis rash now covers almost my entire body. Anyone else have a high sed rate like this?
Thanks
kathie