Hi Annie, I have not been diagnosed with Lupus. ANA was negative, it was done while I was on steroids. I am finally off steroids after 2.5 years. I am on mestinon, cellcept & IVIG. They are going to switch me to Imuran, cellcept is not working.

Except for c reactive protein and sed rate, my blood work is the most normal it has been in 2 years. The anemia is finally gone. WBc show no infection. BUN and creatinin normal. No fever, no signs of any infections. I think it may be Lupus or dermatomyositis. My weakness and pain have gotten progressive worse, as well as the rashes.

thanks
kathie