Here's only one example of what I was making reference to. If you have something such as a CMS, where you have too much acetylcholine already, Huperzine A will make you worse and might actually cause a cholinergic crisis. Also, if you don't have MG, and take HA, that could make you worse/weaker as well.

The problem with a forum is that, well, first, we aren't doctors. Second, we don't know everything you're taking, not even from what you originally stated.

MG is all about muscle weakness that becomes worse after physical activity and relatively better with rest. It can affect any of the 640 skeletal muscles (not smooth muscles).

In order to be evaluated for MG, a neuro would usually do the Acetylcholine Receptor antibody tests and the MuSK antibody test. The neuro would do a thorough clinical exam first. MG is basically a clinical diagnosis that is backed up with tests. Other tests would be a clinical check for double vision, and a RNS or Single Fiber EMG. If they thought you had MG, they might do a chest CT to look at your thymus (some people with MG have thymic cancer).

A brain MRI is only useful at ruling out other causes for ptosis (from MG) or looking for other issues that might be causing your symptoms.

You could go to see a neuro-ophthalmologist to have them evaluate any ptosis or double vision.

What was the exact number of your B12?

Most of your symptoms do not sound like MG, but, again, that doesn't mean you couldn't have it AND something else.

Deciphering medical conditions is not as simple as, "that sounds familiar." Since you have been through a "journey" to figure it out, I'm sure you already know that.

I think a neurologist would be a great first place to start, to at least rule some things out.

Since many neurologists can be rather arrogant, it might be a good idea to list just symptoms and not what you think they might add up to. Neuros tend to think, "How dare my patient think they know more than I do" and that sort of thing.

Anyone else have some ideas to offer?

Annie