My advice is to search out an autonomic specialist for diagnosis and treatment....I have gone that route and right now, I am in a holding pattern until I get a new neuro...my old neuro left the area. Your profile sounds to me, like AAG. I was on Plaquenil and broke out in raised red bumps, and it didn't help anyway. I haven't found anything that is tremendously helpful other than doses of prednisone that can't be sustained. :/ (I have not yet done a TNF blocker or plasmaphersis and right now I am stable enough not to mess with myself) That is not to say I have a normal quality of life, but, I am able to move around, sleep, eat, drink and be merry on occasion. I am managing symptoms and trying very hard not to take much for meds because what is supposed to help one thing always screws up something else.