Originally Posted by LIT LOVE

There are maybe a few RSD/CRPS specialists in the entire country I would consider listening to with such extreme advice as amputation. If you do have RSD/CRPS the issue is dysfunction of your Central Nervous System.

The advise in the past has always been that amputation is only an option if there is gangrene and no other option. Someone posted a link recently that there was a study that amputation might be a viable option, but there are a whole host of other things I would insist on before ever considering amputation--and there was a point early on when I used to fantasize and dream about amputation as a way to have a normal life again.

And please understand when you are in as bad as shape as you are, it is VERY easy to overlook spread or mirroring to other areas, especially when you factor in opiates that mask lower levels of pain.

Why not insist on an inpatient course of Ketamine? I would even consider a spinal cord stimulator trial long, long before considering amputation!

When you say SGB didn't work, what does this mean? No pain relief? Temp pain relief? Did your eye droop and did your throat get sore?

Have you attempted pt in warm water? If you're unable to move it or use it, it will only get worse. If you can only move it for a few minutes under water, that's a start!