New Member
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Join Date: Dec 2014
Location: Denver, colorado
Posts: 3
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New Member
Join Date: Dec 2014
Location: Denver, colorado
Posts: 3
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Thx Darlene.
My tremors started with a stress event where I thought I was having a heart attack ( chest pains radiating down the arm) but turned out to be nerve issues. PT fixed those several months later. Then a few days later after the chest pain issue, it felt like my feet were standing next to a washing machine on the spin cycle. Then I also found out two months later that I had a benign brain schwannoma requiring gamma knife surgery. Tremors just went through the roof. Clonazepam was the only thing that let me sleep. But I am now down to .25mg per night on plan to be off by February 1st. I can finally sleep. Tremors are very low amplitude but 10-12 hertz, and I am hoping that by March or April, after a couple months, that tremors recede or reduce. I think Clonazepam is a double edge sword. Great at first but could be causing tremors to hang around (known medical issues I have found research on the effects of Benzodiazapine). Thought this forum might be a place that others that have ET or Enhanced Physiological tremors can share their issues/remedies. No question exercise helps take ones mind off tremors during the day. I Will post more in a couple months on my experiences after off the benzodiapines for a couple months. I was only on them for 3.5 months, then off for 6 weeks (using 75mg Benadryl instead to sleep), but movement neurologist said there are known memory loss issues with higher doses of Benadryl, so recommended I go back to Clonazepam at .5mg. I found that worked for a month or two, but needed to go to 1.0 mg to still sleep (typical problem of the PAM's that they lose effectiveness and you need to increase dosages to have them still help. Some research I have found shows that after a while you can have withdrawal symptoms even while on the PAMs so it was just time to get off. Some British research has good taper plans but I am finding a 6 week plan is pretty good for me and my PCP Dr agreed. Walks and exercise really does seem to help. I know, way too much information but thought someone else might be in my shoes and appreciate info on enhanced physiological tremor. Very little support out there and most dr's just recommend beta blockers. :-)
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