Thread: Sjogrens???
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Old 01-11-2015, 11:29 AM
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Billylyne5 Billylyne5 is offline
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Billylyne5 Billylyne5 is offline
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Join Date: Mar 2014
Posts: 89
10 yr Member
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Billylyne5, you may not have the autonomic symptoms, but might still benefit from the neruo/rheumy team at an academic hospital (or the Sjogen's Center for eval) that can work together to find the underlining cause of your symptoms.[/QUOTE]

I am in the UK so our system of referrals is sometimes a bit challenging, however I have found that there is a rheumatologist that is involved in a new research program on sjogrens based at a hospital I can get refered too, unfortunately the neurologist there dismissed my symptoms as functional after a 5 minute appointment, my GP and current neuro both felt this was extremely unlikely and discounted his opinion, so it does mean joined up work between neuro and rhemy may be more difficult.
The first challenge is getting the referral to the rheumatologist.
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