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Old 01-11-2015, 03:44 PM
jenng jenng is offline
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Join Date: May 2013
Posts: 135
10 yr Member
jenng jenng is offline
Member
 
Join Date: May 2013
Posts: 135
10 yr Member
Default Hi Sara

It is so variable for people, depending on the cause, which of course you don't know!

For me, I first noticed mild numbness/tingling in my feet left greater than right 13 yrs ago when I was about 32. My first emg showed sural nerve (sensory)slowing in my left lower extremity. Over the years, I've had increased in intensity of numbness, tingling, burning, zapping. I have some motor nerve involvement on my left foot, affecting my outer 2 toes, this happened 2 yrs ago & may or may not have been connected to an issue with my lower spine I had fixed. Muscle twitching like crazy last several yrs. Within the last year I've had squeezing type pain in my abdomen, that I think now is sensory. Everything comes and goes everyday & varies in intensity. I've not had the skin punch biopsy for SFN because I obviously have large/small fiber involvement.

Autonomic issues with increased heart rate, low blood pressure, headaches showed up about 7 yrs after my first sensory issues. I've yet to get a full autonomic workup. I am looking at doing this soon, as well as trying to find a doctor in my area that knows more about neuropathy that isn't diabetic.

Welcome and I am sorry you are beginning this journey. People do have milder courses of this with slower progression. Very healthy diet low in sugar, moderate exercise can help. Currently I am reading Dr. Terry Wahls, "The Wahls Protocol,"who has managed her MS through diet with great results.
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Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013

Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.
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"Thanks for this!" says:
ger715 (01-11-2015), madisongrrl (01-11-2015), sara1011 (01-11-2015), zkrp01 (01-12-2015)