Quote:
Originally Posted by sara1011
Hi everyone,
I'm a young peripheral neuropathy sufferer and after extensive tests over the last 10 months, the cause still remains unknown so it's idiopathic to date. While my symptoms are currently manageable and mostly consist of random stinging, burning, buzzing and twitching sensations in my legs and sometimes arms, I'm concerned about the progression being 31.
Since my symptoms began in my feet and do seem to follow the stocking effect, I'm wondering what happens once it gets to your trunk? So far just my sensory nerves seem to be affected, aside from maybe a bit of the motor nerves with the twitching. Is it possible that once the sensory nerves have all been affected the autonomic next?
My neuropathy was confirmed after my Neuro completed a NCS that had showed slow nerve response and demyelination of the nerves. He did a repeat 3 months later with the exact same results--so I guess, for now, it's good there hasn't been progression.
If anyone also wants to weigh in on their idiopathic sensory progression I would greatly appreciate it  I know everyone is different but sometimes the unknown of the possible progression is the toughest part for me.
Thanks! |
Hi,
I was first affected at 32. I am 42 now. Mine was also small nerves and yes I twitched for 1.5 years and it went away eventually.
Mine progressed to cover my whole body, but did not involve significant autonomic involvement. So far it still does not.
I am not sure it was idiopathic. It followed a respitory illness with h. Pylori infection and I also had undiagnosed thyroid disease.
I have had a few bad exacerbation over the 10 years following a whiplash incident, inhaling paint fumes when my house was painted and after antibiotic use.
I urge you not to think of the worse but believe you will eventually get better. You will save yourself so much stress. Worrying about getting worse caused me to develop anxiety/panic disorder which then led to agoraphobia. Others develop depression. I never got worse, but now I still suffer from anxiety.
So that's my story hope it helps a bit. Aussie