Heeey.
Stumbled across this board during one of my many online scavenger hunts trying to find some help or relief.
Kind of nice, although unfortunate, to see so many other people with 'zombie arms' rather than just feeling like an insane person. Forgive the lack of short version, as frustration forces me to rant.

About 2 years ago I was kayaking and tried to save my boat from being sucked under a tree by some rapids by sinking my paddle in the shore. I didn't feel any pain or ripping, I was pretty geared up, but I apparently dislocated my shoulder or injured a nerve. When I got back to the truck hours later I couldn't control the fingers on my hand to tie my shoes.
I slowly regained some control, but still had a crazy numb hand. I'm a jeweler and an artist, and this kind of ground work down to a crawl. My shoulder was also rolled forward and no amount of shoving could get it to rest on a table. About 7 months in I received a steroid injection in my shoulder, which allowed it to clunk back in to place and helped some numbness, but it turned out the numbness was covering searing pain.
Since then my scapula started severely winging (it looks like it wants to take off like a rocket from my back), my shoulder collapsing, and the worse it got the worse my nerve symptoms became. I lost the strength and use of my right arm and hand, the pain spread in to my neck and back, and I started to have trouble controlling the muscles allowing my chest to expand. My arm started to move on it's own as things got worse and would flop around so much it woke me up at night. My shoulders pop out of joint just trying to lift a can of soup. I've gone from free climbing and weight lifting to spending all day in bed, and vacuuming is a task that sends me to the floor.

8 months ago I finally could not limp it any more or care for myself so I left my home, fought to get insurance, and started seeking treatment. I've seen 29 doctors now (only 9 of which have actually looked at my shoulder) and am caught in an endless loop of specialists deciding I'm not their problem. The shoulder doctor doesn't do scapulas, the spine doctor doesn't do shoulders, the thoracic doctor doesn't do nerves. Round and round.

I've no official diagnoses, as no one has taken me on as their patient long enough to treat or do work up, but working diagnoses are SICK scapula, neurogenic thoracic outlet, brachial plexus compression, and a possible long thoracic nerve stretch injury.
It's been an infuriating ride.
Most doctors have only seen winged scapula or thoracic outlet in a text book, and are baffled as to why my loose scapula falling into my brachial plexus could give me symptoms like brachial plexus nerve compression. MYSTERIOUS!!

I look forward to talking with some other people who are familiar with the medical joy ride, and hearing your insight and suggestion on how not to feel like I'm going to die all the time.
Thanks!!