Hi,
My name is Tara. I'm a 30 something lawyer in MN with a metabolic myopathy. More specifically, I have a Lipid Storage Myopathy and am very prone to rhabdo. It's painful, frustrating and infuriating all at once. I used to be very active and athletic. Now...

I am looking to meet people here with the same diagnosis so we can trade insight on pain relief, foods to eat, symptom checking, venting etc. I look forward to hopefully finding some others who have the same super rare condition. It would be nice to chat with someone going through the same thing.
Tara