Hello Tara,
It's great to have you here.
I left a message on the other thread but just wanted to post a little of it again here for you.
Metabolic Diseases / Mitochondrial Forum
There is also a search feature here. You can type in keywords and find other posts and threads. Quite a lot of posts came up throughout different forums when I searched - Metabolic Myopathy -
http://neurotalk.psychcentral.com/search.php
take care.