JamieMarie23 my name is nannythree14 and I became a member on 1/6/15. I was just reading the posts and yours just popped out at me.

Have you ever heard of Dr. Aaron Filler? He is at the Neurography Institute in Santa Monica, CA. When I saw that you are in California I decided to reply to you. Please look Dr. Filler up. He originally did all his work on the East Coast;Maryland to be exact. When I saw that I was going to contact him, because a drive from Pennsylvania to Maryland was doable for me. At least it was until I researched further and found that he had relocated to Santa Monica at the Neurography Institute. Well I don't have the money to fly out there and have him look at me, but you are right there in California! Google him and read about his procedures. I am trying to find out if any of the doctors he worked with in Maryland were trained to do his procedure.

Dr. Filler uses MR Neurography to find the exact location of the initial RSD incident and then follows it to see where it's headed next; he can actually stop it from spreading further. He uses the MRI machine during the surgery (apparently he pioneered this approach) and from what I understand he has had many successes with his technique. I would give anything to be able to see him for a consult, but it just isn't in the cards. I have to undergo open-heart surgery in about a month.

I hope this information helps you. I have been doing battle with RSD for the last 12 years . When a doctor or nurse asks me what my pain level is, I tell them they can't count that high. I really hope you can get into see Dr. Filler; the sooner the better. Good Luck and God Bless - nannythree14