Thread: Sjogrens???
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Old 01-14-2015, 02:06 PM
Synnove Synnove is offline
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Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
Synnove Synnove is offline
Member
 
Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
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en bloc,
thanks. Yes, I did read up on this doctor yesterday. Would be good to see a doctor with those combined specialties !
I just have to wonder how I can get it qualified for coverage under Medicare. When I went to Mayo, I was under a different insurance, and I was lucky to have a good caseworker in the plan to get it 100 % covered. I was there for 3 days.

In general, from what I understand, Sjoegren;s can have neuropathy burning pain that is different from the typical length dependent "stocking distribution" kind of symptom.
Therefor, I thought, from what I am reading in this thread, aMRN could see dorsal root ganglia problem which verify the kind of neuropathy symptoms that is not length dependent, but proximal ??
I have burning in my feet.legs,hands,arms, face and scalp, mouth and gums, as well as a constant vibrating feeling all over. My neurologist says that is from the small fibers. But it is just left like that, no further investigations.

Has any one here with Sjoegrens experienced chest tightness?
Synnove
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