Do you have any other symptoms related to muscle pain like neck, temple, jaw, head muscle, upper back pain? I have no brain fog or fatigue.

I've had a lot of the symptoms you have had. In 2006 it started with cold wet water running down the leg sensations. I also had chronic stiff neck pain at the time and pain between shoulder blades and I think my vision would shake when up close. The water stuff only lasted a year or so.

Then in 2010 it progressed to tinnitus temple pain, jaw pain and more symptoms there.

I tried trigger point treatment I was eventually referred to a doctor who used an igenx test for lyme disease. He said I had it and I decided to try treatment and see what happened. I took the antibiotics and that is when I started to get rain drop sensations all over my body. This progressed to burning and numbness in the feet that lasted 4 weeks. Eventually it turned into bee sting sensations all over my body. I decided that the lyme disease thing was just not proven and the cure didn't work anyway.

I stopped the minocycline, azithromycine, bactrim and rifampicin after 6 months. The worst sensations calmed down after a few months, but the water persisted the over a year.

They have come back several times after a year. Often it starts with bee sting sensations all over that last a few months, then they turn into less painful cold water sensations. I still get water sensations a lot in the feet when walking with shoes, but not bare foot. I also get them other places.

I've had all sorts of tests in the last five years and my neurologists are stumped. I also found an infectious disease doctor and decided to ask them about the lyme thing and got the C6 test after begging for it. It was negative. I may try the nano-trap antigen test just for the heck of it, but honestly this lyme stuff is really a bunch of hypothesis stuff and really bad doctors playing with magic at this point.

Antibiotics can probably make things worse, so don't experiment. Even if turns out to be proven it is an infection in the future these doctors aren't curing people. I'd rather let it stay dormant than stir it up whether or not it is an infection. That is my experience.

Oh, and I'm not sure what causes the bee stings and burning. Twice they have appeared a few weeks into a bad upper respiratory infection. I may have also strained my neck some weeks before that, not sure. They last a month or two and go away and I'm back to water again for a few years. I think the water might have gone away once after maybe two years, but when I got the bee stings and burning come back I had the water left over after. I was very disappointed. I thought I was over it.