Quote:
Originally Posted by Lisa33
Thank you to everyone for sharing. I think I'm going to start the prednisone, as I agree with the quality of life issue. My double vision and droopy eye (totally closing eye) have made my life very difficult. I'm a 5th grade teacher and some days doing my job is impossible. Not to mention driving or trying to do anything at night because my eyelid is totally closed. Even having a conversation with others is hard because my right eye is basically frozen and I can't look straight ahead without my eye closing or horrible double vision.
I've also read that a few studies have shown that people who start with OMG have a better chance of not having it progress to GMG if they take prednisone. Have any of you heard of this?
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Yes, I've read some of the studies and it is certainly worth a try. It is important to look at your quality of life and anyone who has had double vision and/or ptosis understands how significantly that affects so much that you do in your daily life. It used to tick me off when doctors would tell me "well, it's only double vision."
I only wish that I had had treatment offered to me at the start of my symptoms and when the suspicion of MG was initially raised. I was not treated until nearly 8 years after I first had double vision. I ended up having to retire at age 50 due to the inability to manage symptoms and work full-time (or even part-time). Yeah, I'm just a little bitter about that, but so so grateful that I had the ability to retire with a decent pension.
I hope that you experience some positive results from the prednisone. Do keep us posted.
Cate