I hate that happened to you. I've been contemplating having to have this surgery as well. I have a non union collarbone from an accident 10 years ago. This has caused by anatomy to shift. Which I believe lead to my venous TOS. I'm working with a vascular surgeon that I didn't particularly like when I first meet him but he's starting to grow on me. They've done thrombolysis on my subclavian vein and some of the collateral veins I've developed over the years and its made most of symptoms subside. I'd say I'm at 65 to 70 percent symptom free. I do have some discoloration when I use my arm more than usual but I am of the understanding this takes time to go away. If it goes away completely at all. My swelling is much better. I have a followup ultrasound this week to see how open my veins have stayed. I'm almost certain they are going to recommend life long anticoagulant treatment if I don't have compression relief surgery. To be honest, I'm really not that concerned about that part. I just don't want to get worse from the surgery. I read all the horror stories about surgery and I get concerned. I imagine you hear/read more about the failures and not about the positives.

Thanks for sharing. I'll pray for you.