Hello

I'm in the middle of being worked up for "something neurological." My symptoms are:

Double vision (4th nerve palsy)
Trouble breathing
Trouble swallowing
Muscle weakness
Muscle cramps
Severe fatigue
Complete loss of appetite

Tests:
Single fiber EMG-- normal
Pulmonary function test (done 3 times)-- 28%, 55%, 75%
Pulmonary stress test-- showed sudden drop in O2 with no apparent cause
CPK-- 2000
Aldolase-- 14.9
Acetylcholine receptor antibodies-- negative

My first neurologist specialized in MS, but that's been ruled out by a clean MRI. He believes I have MG so he's referred me to a second neurologist who handles patients with muscular diseases. I'm also being worked up by rheumatology but my autoimmune panels have all been negative.

So here's where I'm confused-- everything I read suggests that CPK isn't elevated with MG. Does anyone have experience with getting an MG diagnosis and elevated CPK? Thanks!