Hi, ArtandIron. Welcome!

I'm really surprised that the rheumatologist didn't think of polymyositis. Or didn't that doctor know about the elevated CPK? You're right; it's not elevated in MG.

http://emedicine.medscape.com/article/335925-workup

Which pulmonary function test are you referring to with those numbers? Did they do MIP or MEP on you (specific to neuromuscular diseases)? And is that the order in which they occurred, getting better each time?

You might also have more than one thing going on. Did they check any basic levels, such as thyroid, B12, Vitamin D, etc.? Why did they think MS? Do you have peripheral neuropathies in your feet, hands, or face? If so, get that B12 checked right away, and don't accept that 400, for example, is normal. It's not, especially when you have symptoms!

When was the last time you had an ECG (12-lead of the heart) done? Have you had an echocardiogram done?

Does your weakness fluctuate? Does it get worse with activities and better with rest? Fatigable muscle weakness is the hallmark of MG.

It's good for you to see a neurologist to at least rule some things out. Hopefully between them and the rheumatologist, you can get some answers!

Annie