Quote:
Originally Posted by justjane37
This "schedule" of pain is very common amongst us. I am exactly the same as you. Sleep seems to "reset" things thank goodness so I try to get as much as I can when I am not feeling well. I do not know the reasoning for pain being at its worse in the late afternoon/supper time either. I have had this for two years and that is one thing that has stayed the same.
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It is as if the TN has a mind of it's own, constantly hiding and tricking me. I sometimes want to scream until I can't stop but the neighbors would freak. The only time I have relief is at night when I sleep and when I wake up ion the morning. That's about it. If I could have two days straight without any discomfort I would be happy.