HI Forum
It is about 6 months since my surgery this past July. Let me recap where I was prior to surgery. I was taking 2100 mg of sinemet per day 25/100 plus 3 50/200
extended release for a total of 2700 mg. At one point I was also on 8mg Requip
extended and 6- 2mg regular. The dosages were increased as the symptIoms progressed. Early in 2013 I ended up in the psych ward of a local hospital for 6 weeks for paranoid delusions and hallusinations. The Dr's on staff (mostly nurses and aides) new little about Parkinsons. Before I could be released I had to insure my home was suitable for disabled. I spent one month in a nursing home home hell. My on and off time flucktuated as did my time in th e wheel chair. I nevr got my meds on time and no one understood why I could walk sometimes and not others. This place had a beautiful website but was actually for the mentally ill. I likened it to "one flew over the kookoos nest" Fast forward...The next year I continued to get worse with more off time than on time. I needed custodial care. Being in a wheelchair is no picnic especially for PWP because of our legs freezing up. Moving was very hard.
On August 5 2014 the stimulator was turned on and I got full use of my legs and body. I can dive again and my cognitive ability is back. The medication has been reduced to 1200 mg sinemet an 1- 50/ 200 total 1400. No comptan no Requip(which by the way made me very hypo manic) February 4 is my 4th tune up with the stimulator. Before DBS my worry was how do do simple tasks. Now my worry is how long it will last. Today I got my life back, the one I tried to take in early 2013.
Damon