Quote:
Originally Posted by Russell
Hi Littlepaw,
I'm so sorry for your reasons for being here but glad you found us.
Don't believe the crap about elevation improves the situation so it can't be CRPS.
I have full body CRPS and my feet respond to elevation too. This is the first time I ever heard of that. The burning stings seem to lighten when I elevate and my neurologist tells me that it's normal in my case.
Although I'm in a wheelchair most of the time I still go through the stinging and discoloration with cold burning.
I just had to chime in because I get worked up when I hear of a misdiagnose or something that I know is not right.
Forgive me for being so upfront. Maybe I should just be quiet...
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Russell,
Thanks for being up front and please don't be quiet! This is just the kind of thing I need to hear about. The stinging burning is miserable when it happens, like I have brushed my foot through a field of nettles. I am thankful it's alleviated by elevation but having a foot you can't put down much is certainly a hindrance to most activities. I went to the second PM doctor after the first kind of threw up his hands. The second was supposed to be a specialist in CRPS but it seems like more of an interest and less of a long experience record for him. Neuro listened to me, said it acts like CRPS but gave me a diagnosis of "neuritis" and didn't say "Go Girl - do something while there's time!" Granted, I do my exercises and desensitize and every other thing I can come up with already but sitting back wondering if you should do blocks or other interventions (I am now 6 months out) will drive you nuts. I don't want to walk past an open window only to find closed doors down the way....
Be well and thanks for your comments. It is my hope that we all have healing and restoration.
Littlepaw