Quote:
Originally Posted by Simurgh
Dear rich, I am so sorry that happen to you. 
I hope that after all something can be done to improve the situation.
I noticed that you are from UK. I live in London and was seen by 2 vascular clinics - Royal London Hospital and now St George's Hospital.
At RLH they suggested me to have the surgery on both sides as I had DVT last year and there is some evidence of vein compression (MRI). Doctor at St George wants to do more tests.
Any input on which doctor or hospital to avoid would be of a great help.
Btw apart from the last year DVT, I have ZERO symptoms. No pain, no tingling, no discomfort, arm is perfectly recovered after a few mouths... Have no idea what to do. Doctor at Royal Hospital said I am risking to have another DVT without surgery. |
My situation is similar to your situation. I had a second DVT event in my left arm in December. I can tell they can not tell you the clot is gone without at least a ultrasound. They can't tell you how bad the clot really is without a venography. I found out I had a chronic clot that may have been there for years. My collateral veins were carrying the load with very little symptoms. Just some swelling that I could tell. I thought it was mild carpal tunnel and ignored it. I had some collateral veins get clots in December. At least that is what they think happened. They tried dissolving the clot and it closed right back up but it helped my collaterals. My left subclavian vein is completely occluded.
If you haven't gotten a ultrasound to prove your vein is now open, then ask them to do a ultrasound. My surgeon told me that if my vein would have stayed open, he would have recommended surgery so it would have a better chance of staying open. He just wants me to wait now and see how my collaterals work and what symptons remain over time.
Just my experience and I'm not an expert.