Quote:
Originally Posted by Simurgh
Dear Sundance,
Thank you for your reply and I hope your symptoms get better and you don't need a surgery.
I only had one clot that happened more than a year ago. Since then I am on anticoagulants. I did ultrasound on many occasions and they told me my vein is open with just minor residual.
I also did dynamic ultrasound where they tried to see if there is compression. In certain positions they can see some compression. For example when I am lying down there is no compression at all. When I stand up there is some compression and when I rise my hands the compression actually gets better (which is a bit weird).
I am doing venogram next week and hopefully they will know more. For me the hardest part is that I really have no idea how to make a decision. I am perfectly fine now, no symptoms at all that I can tell. But if there is some vein compression should I still do the surgery.   |
Don't even think about it till after the venogram. You'll know a lot more after that. They can tell if you have vein scaring and how bad the compression is. If you do have 1st rib compression, then should be able to se exactly where your first rib has been compressed by the rib. My doctor showed me the exact spot. It showed up perfectly when they had the ballon in my arm and took the x ray.
I know its dishearting going through this. I think about it all the time. Even when my arm has no symptoms. Keep your head up and get your mind on other things. Its extremely rare that a clot moves. My has become so fibrous that it took a LONG time for them to get small wire through it. I have vein scaring that would require a vein bypass they I don't know how successful the surgery would be. Right now, my symptoms aren't that bad. I have some pain but it does good with just Tylenol. I can't use my arm like I use to use it but I've been blessed in the fact I don't need to much anymore. I realize that I'll probably never pump weights our even try to pickup more than 5 with it again. if my symptons get worse I'll probably go for the vein bypass.
If the venogram shows little scaring and just a small residual clot. I'd personally at least get the 1st rib removed. I don't think I'd do the complete muscle division unless the venogram shows compression by the muscle. From everything I've read and studied, it's the best option for long term results. Again, I'm not an expert and who really knows. Just my thoughts and some of my experience.
Either way, I pray the Lord blesses and helps you.