Quote:
Originally Posted by tammy jo
Hi. i haven't posted before, but ive reading your posts for awhile now. ive found this site to be very helpful and informative.
Ive had cprs for 5 years in march 2015, although i wasnt diagnosed until approx. jan. 2014. its in both of my hands and arms with my left side being the worse. I now fear it has spread to my left hip and ankles. My doctor doesnt feel that it could be cprs in my hip because i have not had a nerve injury there ?
I have actually learned more from this site than anywhere. The medical professionals in my area arent well informed and that leaves me lost.
I feel very alone with this condition. No one seems to know anything about it including medical, friends and family.I dont feel as alone knowing there are others that can identify with me. although i hate meeting you this way, since we are all suffering, but im glad i did.
now in addition to cprs type 2 i have atrophy, high blood pressure, severe depression, anxiety and fear it is spreading.
Any communication would be deeply appreciated.
Best of luck to you all.
Take care of yourselves
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Hey Tammi Jo,
I too have CRPS and have definitely felt alone, and have isolated. I ran into another baseball mom here in my town and she asked me about my injured hand that I had when our kids played ball together a few years before. I explained that I was the proud owner of CRPS and began explaining it to her when she interrupted me and told me her daughter had the same. We've remained close and fast forward are working to bring awareness of this disease to the world. Jennifer spoke with the editor of a small town newspaper about it and he ran a story about it on the front page. I live in a town of maybe 50K people. The people who have CRPS are coming out of the woodwork!
Please don't give up! There are so so many support groups out there for you.
Be well!