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Old 01-18-2015, 01:11 AM
pogo pogo is offline
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Join Date: Jan 2014
Posts: 124
10 yr Member
pogo pogo is offline
Member
 
Join Date: Jan 2014
Posts: 124
10 yr Member
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45cm is crazy high pressure. is the shunt blocked or was it intermittently blocked.. Has anyone done a shuntogram or otherwise determined if the shunt is patent? Treatment for IIH is usually with a shunt, so if his shunt is not working and he is getting by without it working, that is amazing and scary should pressures go too high. My daughter's pressures are slowly going up so I've read about IIH because there is only so much to read out there about dealing with higher pressures (slit ventricles are flip side of same coin sometimes). Had to stop reading about it, vision issues freaked me out too much (get double vision, something like dizziness, and other visual effects with many headaches since last summer, even if they appear to be over draining related). Your pediatrician sounds unbelievably certain.
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