Thread: Tacrolimus
View Single Post
Old 01-18-2015, 11:34 AM
cait24's Avatar
cait24 cait24 is offline
Member
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
cait24 cait24 is offline
Member
cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
Default

Thanks Annie. I was concerned about the side effects. I think they choose that because it is very fast acting and my mobility and pain has gotten much worse since coming off steroids. I was left a message and still need to talk to the doctor first. Before they put me on any more immunosuppresants, I want a muscle biopsy and complete antibody panel to figure out what else is going on - ANA, SSA, SSB, SM etc. I am willing to try this for a short time as long as there is a bigger plan. But I am in need of immediate relief. I am thinking of asking for IV steroids with the IVIG. I can't take oral - nausea, vomiting and GI bleeding.

I will keep you posted,
kathie
cait24 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (01-18-2015)