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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Thanks Annie. I was concerned about the side effects. I think they choose that because it is very fast acting and my mobility and pain has gotten much worse since coming off steroids. I was left a message and still need to talk to the doctor first. Before they put me on any more immunosuppresants, I want a muscle biopsy and complete antibody panel to figure out what else is going on - ANA, SSA, SSB, SM etc. I am willing to try this for a short time as long as there is a bigger plan. But I am in need of immediate relief. I am thinking of asking for IV steroids with the IVIG. I can't take oral - nausea, vomiting and GI bleeding.
I will keep you posted,
kathie
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