I have muscle pain, joint pain, tendon pain, electrical shocks, it hurts right to the bone. Since coming off prednisone, my arm muscle have gotten so weak, the legs were always weak. If I get a good nights sleep the pain goes away and then gradually build as the days goes on. It is unbearable at night.

I think my other symptoms fit Lupus or dermatomyositis, Both effect all organs, give lot of pain and give the face rash and livedo reticularis rash. I am leaning towards dermatomysitis because I have the rash on the eyelids and swelling of the eyes before prednisone. Dermatomyositis is much rarer than MG only 1,000 cases in US. So a lot of dermatomyosotis have MG, but not a lot of MGers have dermatomyositis because it is so rare. I just want to be thorough tested and diagnosed before they put me on more meds.

I am going to go to my local Rheumy or one at John Hopkins before I start new meds.
kathie