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Old 01-18-2015, 01:38 PM
anon6618
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anon6618
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I don't want to be a pain, but you asked for opinions, and not to scare you, but I'll just give you my humble opinion.

Prednisone, I hate it. True, it is the only reason I can (most of times) breathe on my own, but that's about it. I was a healthy young person, and now I'm not only a MG patient, I'm also -probably even more- known as a prednisone patient.
I have GMG and would never have taken prednisone if it was for my eyes (or mounth or legs for that matter). I only take it because I have no option and would be in the hospital on oxygen fulltime if I didn't.

Yes, I am a little ray of sunshine

No, but to be fair, my body's response was beyond what could be expected, and my MG is severe and is, how do they call it, refracting (?). So my experience is not someting to expect, just something to keep in mind.
I do wish however, someone told me possible side effect beforehand, so I (and family who has suffered a lot too, mostly because of fear for my health, but my steroid induced psychotic periods too), would all be a bit more prepared. All I was told it would be spectecular and awesome and my weakness would go away and stuff.

And well, what Annie says.
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"Thanks for this!" says:
AnnieB3 (01-18-2015)