Do you have a pulmonologist? Since your breathing is bad, you really should be checked out by them and ask them what would be the best thing for you!

Have you had an overnight oximetry? I've had it done and it's easy.

You can't tell what your O2 is at night by what's going on in the daytime. When MG is bad, it can drop a lot while sleeping.

And poor breathing is hard on the heart and brain. If you haven't had an ECG or an echocardiogram, I would highly recommend you do that.

It's really not as simple as whether the oxygen concentrator is good. They work well and are great for some people, especially those with COPD, for example.

You wouldn't want to retain too much oxygen either, so it depends upon how your MIP and MEP are doing.

Do you have a BiPAP?

Breathing "helpers" can be tricky and it's best to have a pulmonologist fully evaluate where you are right now.

I'm really sorry that you aren't doing well!!!


Annie