Quote:
Originally Posted by SherrieC
I am living with TN. I've been living with this for 10 years (misdiagnosed for 8) I am currently taking gabapentin 3600mg/day. I have just ordered a vitamin pack geared specifically toward TN relief. I get 8 hours of sleep n I try not to have any stress. My episodes the last week have become more frequent. I have a tumor that rests on the nerve in 4 places. My neurologist says if they go in they would cause more damage than good because of the position of the tumor. He did send me to a neurosurgeon in Miami n he said the same "let's keep an eye on it". I'm frustrated!
|
Hi SherrieC,
My TN is caused by a knot of arteries around the nerve before the branching. This causes parasthesia as well as the chronic pain events. I can understand your frustration at it being inoperable as I am too much of a risk under anaesthetic to have a sheath fitted (heart). I am also a cancer survivor - 1 year. Can you not have Chemo and/or Radiotherapy on the tumour to try to remove it?
Either way, know that you are not alone in suffering this pain. I have severe Neurological Hypersensitivity and have Lidocaine Infusions and take Ketamine, oral Morphine and Tramadol which dulls my whole nervous system. Gapapentin caused a severe reaction, made my eyes swell and made it feel as though the front of my head had split open.
There are other meds to treat TN, but all take time to build up in your system. Hopefully your Neuro will hit on the right one for you soon.
Find ways to ease your frustration - coming on here to vent is one way, and there are always members around for support. Above all else avoid Depression.
Always here for a chat.
Dave.