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Old 09-22-2006, 05:00 PM
marfla marfla is offline
Junior Member
 
Join Date: Sep 2006
Location: Orlando FL
Posts: 24
15 yr Member
marfla marfla is offline
Junior Member
 
Join Date: Sep 2006
Location: Orlando FL
Posts: 24
15 yr Member
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welcome back undxcraig. i replied to you on another board regarding what i have been recently dx'd as having. spinocerebellar ataxia. a genetic disease although my parents or grandparents we aren't aware of having. i do have a great aunt and great uncle that had something family called "creeping paraylsis" and both ended up in wheelchairs.

my neuro said i too could just be the first to exhibit symptoms, or have a new mutation not identified yet. since i now have two neuro's stating this is what's wrong, for now I will go with that. nothing either can do but treat symptoms. both stating it is a chronic progressive degenerative neuro disease. oh my PCP agrees too.

just sounds like you and I may have some things in common so wanted to share what i have been told in June this year.

good luck

marfla
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June 2006 dx: spinocerebellar ataxia, a chronic progressive degenerative neuro disease, gait ataxia, truncal ataxia, sensorimotor polyneuropathy
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