I'd never even heard of internet forums when I started my journey and quest. All I knew was that I hurt terribly and I wanted help. The computer was new to me and I struggled daily to find my way thru the various buttons, command, hardware names all searching for help. When I found this forum the first time I was so full of hope. Hope that I'd found a cure here. I was too naive to know there might not possibly be one for me. Heck, everything that had ever been wrong with me (lots) had been fixed in some way.

So it was with great expectations that I logged into this forum and naively asked something stupid like how do I fix this? I bought Vit. B-12, fish oil, Alpha lipoic acid all by the bottles. My medicine shelf was so full. My husband would tease me and say are you going to have some breakfast with your pills? I'd come back every day knowing that you all would have some new miracle cure for me. Nothing worked. I did improve some in the beginning or at least it seemed to, then it started advancing again.

Then I got the diagnosis of Sjogren's Syndrome and I remember asking Glenntaj about how Sjogren's affected the nervous system and asking him if we were able to stop the Sjogren's, would I be cured? His answer when it came back was the one that turned the light on in my head. I'll never forget that after reading it and researching the answer he gave me, I knew there was no cure for me.

But I continued to come here to try and help as many people as I could and to have the friendship of all this wonderful group of people. A lot of us have been together a long time. I feel as if I've made a group of friends I'd never have had the priviledge to know. If I were cured tomorrow, would I come back? You can bet money on that.

Billye