Hello Angii,

Welcome to the NeuroTalk Support Groups.

Did the doctor call your diagnosis Sydenham's Chorea or simply Chorea or that you had Choreiform movements?
There are many different reasons a person may have chorea.

My son was diagnosed with Sydenham's Chorea at aged 5. Differential diagnoses were made some 5 years later. (long story). He was extensively tested at age 5 for many different causes of choreiform movement disorders including Wilson's Disease, Brain Tumours, and Huntington's Chorea plus more.

Jones Criteria are used in diagnosis of Sydenham's.
http://reference.medscape.com/calcul...osis-rheumatic

http://www.neuro.it/documents/materi...LANDRINI_5.pdf
Curr Neurol Neurosci Rep DOI 10.1007/s11910-011-0202-2
Differential Diagnosis of Chorea Ruth H. Walker

http://emedicine.medscape.com/article/1149854-overview
Medscape - Chorea in Adults
updated Oct 2014

I'm curious to know if you've been ill in recent months or had a "strep throat" in recent months? GABHS [Group A beta-hemolytic streptococci] or if you have any other symptoms apart from the movements?

I really have to say that I'm so sorry you're dealing with this.
It would be extremely worrying and also extremely difficult to do things in daily life.