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Member
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Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
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Member
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
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Quote:
Originally Posted by Conductor71
Hi Gerry,
I was wondering if you could update us on how the amino acid therapy fared for you? I recently talked with a person who has PD for 17 years and is doing remarkably well on the therapy. However, I have some doubts about it working for everyone, and I still suspect that over time a person would still develop ons/offs and dyskinesia if they were on any conventional drugs prior to starting this more natural approach.
If you could share your experience with us, that would be great!
Thanks,
Laura
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Hi Laura
I continue to do well on it. I used to have tremors, dystonias and fasciculations but now I don't. On the other hand, walking is a little worse, I think. Some things come and go like orthostatic hypotension.
I don't have off times or dyskinesias or other side effects. It's only been four years since diagnosis, though. Eating definitely hinders the effect, however, which is not supposed to happen. I am consulting about that.
Dr. HInz has put all his PD patients on 300 mg per day of vitamin B6. That makes me a bit concerned. We'll see how it goes. http://new.neurosciencemyths.com/?page_id=1208
Also on the negative side, they have raised the price of the supplements that were not cheap before!
Take care,
Gerry
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
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