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Old 01-26-2015, 12:40 AM
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Marie33 Marie33 is offline
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Join Date: Sep 2012
Location: Long Island, NY
Posts: 180
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Marie33 Marie33 is offline
Member
Marie33's Avatar
 
Join Date: Sep 2012
Location: Long Island, NY
Posts: 180
10 yr Member
Default SFN & IGT vs Idiopathic

[QUOTE=janieg;1119825]Sorry, just now seeing your response to me, Marie.

Here's the story on my sugar, and I'm going to try to keep this really brief.

My fasting glucose is 82 and my A1C 5.2%. Both perfectly normal, BUT I suffer from Reactive Hypoglycemia so I know there's something bad going with the way my body responds to an influx of sugar.

Using a cheapie glucose monitor from WalGreens, I started monitoring my glucose at home. Having educated myself on what's normal and what's not, I would come to realize I definitely have a problem. My glucose spikes abnormally high after a high carb meal, and stays too high for too long afterwards. I was running my numbers by a diabetic friend as well as others on a diabetes forum, and the standard responses were "that's not good" and "you're on the spectrum."

So is this cause of my SFN? I don't think there's anyway of knowing, but given that something like 50% of all SFN sufferers are diabetic or pre-diabetic, I certainly think it's a possibility as does my primary care doc. If that is what's going on, then maybe I'm just genetically predisposed to SFN and that has caused me to develop it sooner than most.

Have you taken the Oral Glucose Tolerance Test where you drink the disgusting sugary drink and then have your glucose monitored for 2 hours afterwards?

Hi jan, thanks for your response..
My fasting glucose is still in the 80's ranging between 79-89. Your A1C is lower then mine. 5.7 puts me in "Pre-diabetic" range, according to lab standards. My PC Doc disputes that.
I also have a One Touch Ultra 2 testing kit. I was testing, (still am) for after- meal spikes. My goal is to stay under 140 after one hour and under 120, preferably 100 after 2 hours. I have been doing this religiously for over 2 years and my numbers have been great. I eat good and exercise almost everyday (TM)

What I dont understand is ,you wrote My glucose spikes abnormally high after a high carb meal, and stays too high for too long afterwards. I was running my numbers by a diabetic friend as well as others on a diabetes forum, and the standard responses were "that's not good" and "you're on the spectrum." If your having 'high spikes" after a high carb meal, and stays too high for too long afterwards, how could your A1C be only 5.2? That is not in a pre-diabetic range. How long have you been having SFN pain for?

Yes, I had the yucky two hour glucose tolerance test. My number was 167. Normal is under 140 after the second hour. So I was told I have Impaired Glucose Tolerance (IGT). It's pre-diabetes. But it's been under control for over two years.

I think it's a possibility that my IGT kick-started this whole SFN thing. My PC and Endo don't believe this is the cause of my SFN. The Endo said my numbers were "too low". to cause this kind of pain. I do not agree with him!

I feel like my electrical system is out-of-whack. But as you said, there is no way of knowing. The only thing that throws me off track is when this started, I only had pins and needles in my calves and burning under my feet. Three years later, I have widespread pain, buzzing and burning all over my body , including my mouth , lips and scalp. I was hoping with tight sugar control, my symptoms would improve, but they didn't. I went on to get worse. Very disappointing and discouraging. So how does one explain this?
I'm baffled, confused, in pain and depressed.
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