Hi, Whitecap.
First, you can't be denied the right to work if you are disabled. Sounds rather odd, doesn't it?
If you aren't able to work, you can apply for social security disability insurance.
Has a neurologist rerun the Acetylcholine antibody test AND the MuSK antibody test?
Do you have shortness of breath? If so, you can see a pulmonologist for an evaluation (including tests called MIP and MEP).
Do you have any pain? If so, can you describe it?
I personally do not work, though I wish I could. There are people with MG who are on treatments and do work. It all depends on what treatments work for you and how you do.
If you say where you live, maybe someone can refer you to a MG expert.
It sounds as though you've been over-doctored, instead of smart-doctored.
Have you had basic testing such as B12, vitamin D, thyroid, inflammatory markers (ESR, CRP, CPK), or any other basic tests?
I honestly don't know by what you've said what is going on with you. You really need a SMART doctor to help you figure all of this out!!
Good luck!
Annie