Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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I suggest speaking to the doctor about a Mestinon trial. If you're having any trouble swallowing, the Mestinon Syrup might work out better for you.
If IVIG is helping, chances are you have MG.
They could always do a Tensilon test, but doctors don't often like to do that if you are doing poorly. It can make MG worse after it wears off.
You need to talk to someone about being home alone, too!!! Do you have a good internist?
It wouldn't hurt to ask to try the Mestinon, but it would sure hurt to not get enough care! I hope they'll listen to you.
Annie
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