Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Whitecap, Having a massage is the same as exercising. So, depending upon how your MG is, you should evaluate the massages accordingly.
It takes some time to know what "pushing it" means for your MG.
If you are doing okay, do an activity, and then "crash" afterwards, then that is too much.
If you only get a little weaker afterwards, then that's rather normal for MG and a good night's sleep and/or nap will help get you back to your "baseline."
Pushing too much would be when you keep getting weaker, ignore that you are, and don't alternate activity with the right amount of rest/drugs.
Weakness can also come on so slowly that you don't realize the severity of it. If any muscles begin to cramp up or spasm, if you are rather short of breath, can't swallow, or can't move limbs well, then you have pushed way too far and might need to go to the ER.
I know that when my entire face droops, for example, I need to rest right away.
I highly suggest being evaluated by a pulmonologist right away. Make sure they do MG-specific testing (MIP and MEP). Those are tests that show how well you are breathing in and out.
Alternating rest with activity is a normal part of my MG life. I don't ignore those signs my body gives me. When I did (2005), I ended up in a crisis. Don't do that! It takes a lot longer to recover after your MG is pushed too far.
Any other questions?
Annie
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