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Old 01-29-2015, 10:50 AM
Synnove Synnove is offline
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Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
Synnove Synnove is offline
Member
 
Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
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Darlene and Sue,

Thanks to both of you for your replies and suggestions.

Yes, I had been keeping a record of the "strange" symptoms which my neuropathy neurologist suspected were symptoms of possible Simple Partial Seizures.
This particular neurologist is a professor at a teaching hospital. I was originally referred to him, and he diagnosed Sensory Motor polyneuropathy and Small Fiber Neuropathy. He is a little "laid back".

My local neurologist, is actually a neurointerventional neurologist, but also a general neurologist. I have stayed with him due to the fact that I feel he saved my life by coiling my cerebral aneurysm, and he has gotten to know me. He is good at referring me out when needed.
This doctor ordered 72 hour video recorded EEG, which was done at one of our local hospitals twice, and it turned out negative for seizure. The first time I had it, I had no symptoms during that time. During the second test, I had one episode.
But I never got to meet the assigned epileptologist who was overseeing the EEG procedure.

My symptoms were very frequent for a while, then less. I have them now. But I am getting so tired of it.
I have so many neurological symptoms and diagnoses.

My original brain MRI showed multiple bilateral white matter lesion suspicious of MS. - Cerebral aneurysm. (unraptured) - Lacunar Infarct. - A 2 cm left posterior frontal area a deep cerebral congenital venous angioma.- And bilateral vertebral artery vascular impingement on the medulla.
( I wonder if this has any thing to do with my symptoms) I might ask a neurosurgeon I saw last year.

I also have Ice Pick Migrane with aura. ( the aura is a zigzag bright light in my visual field, but I have not had that aura for a long while.
The headaches though, are quite sharp pain that feels like a spasm of the blood vessels. I get the pain coming right out in my face from the side.

I have seen MS specialist neuro twice. I have had numerous repeat MRI to check for new lesions, but all the reports just says stable lesions, or " no change".
I had negative Spinal Tap.

I have dizziness and vertigo.

I have seen doctors about all of the about. I just had a repeat brain MRI on 12/31, report said " no change". And I have not seen the neuro since. He said he was planning to set up some tests of Evoked Potentials.

I think I probably do not have seizures, thank heavens, but I wish the doctors could find out and tell me what these " strange" symptoms are.
I am thinking to plan for a visit to Hopkins.

Thanks for reading, and I am sorry I was rambeling.

Last edited by Synnove; 01-29-2015 at 10:52 AM. Reason: extra info
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"Thanks for this!" says:
Darlene (02-02-2015)