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Old 01-29-2015, 08:29 PM
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Littlepaw Littlepaw is offline
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10 yr Member
Littlepaw Littlepaw is offline
Senior Member
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,537
10 yr Member
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[QUOTE=JakesMom;1121089]Hi All!,

He has chronic migraines, he says if you split him in half straight down the middle, his complete left side of his body is in constant pain. He sometimes has chest pain, muscle twitches, and tingling. Hot feels hotter and cold feels colder on his left side. Tons of blood work, CT's and MRI's. Usually the blood work is fine. Recently, we have been told that his B12 is high, (this is the second time in a year it has been elevated) he does not take or drink any kind of supplement. And his vitamin D levels are low. His red and white blood cells are normal and so are his platelets.

He never feels good and has the blues. I was wondering if any of you have experienced anything similar?

Hi Jake's Mom,
My issue is unrelated but I do know loads about nerve injury and compression and have had more than one nerve related surgery. Has anyone suggested thoracic outlet syndrome as a reason for the chest pain, tingling etc.? I know from my own nerve issues that tingling and even muscle twitches can come from nerves that are being compressed. this can also cause a cold limb or a limb that is sensitive to temperature.
It's always good to try new meds, different things work for different folks. Neurontin was mediocre for me and made me depressed. Nortriptyline 25 helps my nerve pain quite a bit and is better on mood. They also use this for migraines with fair success. Botox can also help. Low Vit D is linked to nerve issues and chronic pain - definitely worth supplementing. Mine was low even on a multivitamin and living in Texas. Go figure...

So sorry your family is going through this. It's killer when our babies are the one's who suffer.

Sending Healing Love
Littlepaw
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